osteosarcoma new treatments

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Monday 14 January 2008 1.18pm
A young teenager has finally been diagnosed with this, where on the net would be a great place to start looking for latest research? or is that a stupid question?
Monday 14 January 2008 4.59pm
He or she could start here http://en.wikipedia.org/wiki/Osteosarcoma
Tuesday 15 January 2008 11.50am
Thank you love.it's a real shock and no one is thinking straight. she's just turned 19..:-( she's had pains for ages and doctor naturally thought she'd pulled a muscle!
Tuesday 15 January 2008 12.02pm
Oh, how sad. What a shock.

There's quite a bit of info here, though it's not that new: http://www.kidshealth.org/parent/medical/cancer/cancer_osteosarcoma.html

and more here: http://www.ctu.mrc.ac.uk/euramos/about_osteosarcoma.asp and here: http://www.ctu.mrc.ac.uk/studies/BO08.asp about the recent clinical trial for a new treatment.
Wednesday 16 January 2008 9.14pm
Dear Jan,
so sorry to hear this,a couple of suggestions,try Great Ormond Street,if it is not listed on their factsheets it is well worth calling them,on the net kidshealth.org has good information but the treatment section is not completely up to date.(American site)
www.cancer.gov is updated frequently and whilst it is also an American site it does give you dates of when the sections were reviewed.

Uk sites - www.cancerbackup.org.uk are very good and usually right up to date,they offer more personal support on the phone and usually have details of the most up to date treatments (some are clinical trials).They have very good Q&A sections on how to find out about latest treatments and things to consider/ ask your specialist if you are looking at taking part in any new treatments.They also look at the impact on family members and can offer really good support.The freephone number is 0808 800 1234 or you can email them through the website (you are emailing a specialist cancer nurse)
The Royal Marsden site is quite good
www.royalmarsden.org.uk
I agree with TLMJJ with regards to the Euramos website
I hope this helps.
Best wishes Kate
Wednesday 27 February 2008 10.58pm
Jan
Sorry to hear your news. I have a pretty good idea of what is involved and latest treatments etc since I have been involved in a recent case of osteosarcoma myself. I see you have got a few leads and they are a good starting point.
The position I am coming from is that my son had osteosarcoma and we were totally committed to keeping up with treatments and best practices for ages so I know what you will be going through.
I have a lot of information on the subject including treatments and an insider view of what it really means, however what I have to say depends on how much you want to know and how involved you intend to be. - Are you prepared to look this devil in the eye and take it on the chin in order to learn from past meedical misjudgements etc....

If you are and are happy to take on board what I have to say I may be able to at least warn you of some of the not so obvious pitfalls and our mistakes - which appear to be not that uncommon. The first thing that I would do is give you a breakdown of what happened to my son which unfortunately did not have a satisfactory outcome, but leaves an opportunity learn from hindsight.

Yours sincerely

Vince Horton
Friday 29 February 2008 11.29am
Thank you Vince, i did send a pm to you..
x
Thursday 6 March 2008 1.42pm
Vince I have not forgotten..having trouble access my private mail on se1...will try again later..Jan
Monday 30 January 2012 8.15pm
Hope all's well... please have a look at the folowing link... it is a story that shows it can be beaten

http://www.amazon.com/Count-To-Ten-ebook/dp/B006GQXR4I/ref=sr_1_3?s=digital-text&ie=UTF8&qid=1322820782&sr=1-3
Monday 30 January 2012 9.22pm
Hi "Andy" - a couple of points on your excellent post...

First, your link is to an American Kindle version of a book - that cannot be purchased in the UK.

And some of us on this forum love tracking down scam posts.

The author of the book is one "Sheila Mary Taylor" - also known as "Sheila Belshaw".

The book is about Sheila's son "Andrew" - and his tragic battle against cancer.

Here is a link to a review of the book.

See, if I was a betting man or a cynic - I would think that you, "AndyBelsh", doing his first post in this forum where somehow involved in the production or publication of the book.

I notice that you also posted a couple of time on "CancerCompass" - here.

So "Andy" - me thinks you did a search on the Internet for a cancer related forum and found ours - you then posted in some underhand tacky fashion.

Or am I wrong?
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