so sorry to hear this,a couple of suggestions,try Great Ormond Street,if it is not listed on their factsheets it is well worth calling them,on the net kidshealth.org has good information but the treatment section is not completely up to date.(American site)
www.cancer.gov is updated frequently and whilst it is also an American site it does give you dates of when the sections were reviewed.
Uk sites - www.cancerbackup.org.uk are very good and usually right up to date,they offer more personal support on the phone and usually have details of the most up to date treatments (some are clinical trials).They have very good Q&A sections on how to find out about latest treatments and things to consider/ ask your specialist if you are looking at taking part in any new treatments.They also look at the impact on family members and can offer really good support.The freephone number is 0808 800 1234 or you can email them through the website (you are emailing a specialist cancer nurse)
The Royal Marsden site is quite good
I agree with TLMJJ with regards to the Euramos website
I hope this helps.
Best wishes Kate
Sorry to hear your news. I have a pretty good idea of what is involved and latest treatments etc since I have been involved in a recent case of osteosarcoma myself. I see you have got a few leads and they are a good starting point.
The position I am coming from is that my son had osteosarcoma and we were totally committed to keeping up with treatments and best practices for ages so I know what you will be going through.
I have a lot of information on the subject including treatments and an insider view of what it really means, however what I have to say depends on how much you want to know and how involved you intend to be. - Are you prepared to look this devil in the eye and take it on the chin in order to learn from past meedical misjudgements etc....
If you are and are happy to take on board what I have to say I may be able to at least warn you of some of the not so obvious pitfalls and our mistakes - which appear to be not that uncommon. The first thing that I would do is give you a breakdown of what happened to my son which unfortunately did not have a satisfactory outcome, but leaves an opportunity learn from hindsight.